Sheffield Children’s NHS Foundation Trust has been recognised by Muscular Dystrophy UK for providing outstanding care for people with muscle-wasting conditions.
Sheffield Children’s was awarded Centre of Clinical Excellence status by the charity, alongside 16 other centres across the UK. The awards recognise excellence across a range of criteria, including the care received by patients, and help to drive up the standards of clinical support for people with muscle-wasting conditions.
The multidisciplinary neuromuscular clinic at Sheffield Children’s was set up 20 years ago to provide care for children across South Yorkshire, North Derbyshire and Lincolnshire with nerve and muscle conditions such as muscular dystrophy, spinal muscular atrophy. The team includes neuromuscular doctors, a specialist neuromuscular physiotherapist and a specialist neuromuscular care adviser.
Dr Min Ong, paediatric neurology consultant in the neuromuscular team at Sheffield Children’s, said: “Receiving this status is recognition of the dedication we have towards our patients and our ongoing ambition to provide them with outstanding care.”
“Patients with neuromuscular conditions require some of the most complex care from multiple specialities. By creating a collaborative model which brings together teams from across Sheffield Children’s including respiratory, cardiology, spinal surgery, orthopaedics, intensive care team, endocrine, and specialised bone team we are proud to provide bespoke care for our patients with neuromuscular conditions.
“This combined approach to care for each individual patient is part of the work we do every day as we strive to provide high quality care for children and young people. We are delighted to have been awarded the Centre of Excellence status.”
Rob Burley, Director of Campaigns, Care and Support at Muscular Dystrophy UK, said: “We would like to congratulate Sheffield Children’s which has deservedly been awarded Centre of Clinical Excellence status.
“Sheffield Children’s provides a comprehensive service for people with muscle-wasting conditions and promotes best practice, ensuring patients have access to the best possible healthcare near where they live. Improved clinical care means faster access to treatments and potential cures.
“As the leading charity improving standards in muscle centres, we want to make sure everyone living with a muscle-wasting condition gets excellent care. We will continue to work with Sheffield Children’s and other centres to ensure this ambition is realised.”
In the UK, 70,000 people have a rare or ultra-rare muscle-wasting condition. With just over one in every 1,000 people affected, many people don’t know much about the condition.
At Sheffield Children’s the team provides comprehensive care for children and young people with muscle-wasting conditions, including regular spinal combined clinics which reduce visits to the hospital. It also has on-site specialised diagnostics services for neuromuscular conditions such as neuroradiology (including muscle imaging), neurophysiology, genetics, biochemical analysis, muscle biopsy and a gait laboratory.
The team at Sheffield Children’s are also heavily involved in national research. This includes the North Star Audit for children and young people with Duchenne Muscular Dystrophy, previous research studies of hydrotherapy in boys with Duchenne Muscular Dystrophy and national collaborative work outlining a new form of Brown Vialetto-Van Laere syndrome.
The Centres of Excellence awards review began in 2012 and takes place every three years. It involves a rigorous assessment of services by experts, with a panel of health professionals and patient representatives developing the criteria for the awards. Patients’ views were also gathered as part of the review process.